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Why early participant engagement is now a top priority in genetic disease research

pharmaphorum

Pharmaceutical companies and biotechs are also adapting their approaches, launching patient finding and engagement programmes that can start years before clinical trials begin and allow them to run ‘recontact by genotype’ studies that the Resilience Project would have liked to do. Giving participants something in return.

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Can genetic data be a magic bullet for drug R&D?

pharmaphorum

As part of the US government’s Cancer Moonshot initiative, a Cancer Moonshot Biobank was launched that asked participants to donate biospecimens and associated health information to aid research. The focus of research projects on gathering data, particularly genetic data, is now common place in nationwide health-focused initiatives.

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Biorepositories as a Guiding Resource for Research & Drug Discovery

XTalks

Biobanks are used for the coordination of high-yield patient sample collection. Moreover, biobanks are no longer passive biorepositories for accrual of samples and serve a more utilitarian function in identifying and coordinating specific research cohorts for longitudinal and prospective studies. Biobanking Models.

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HFpEF vs. HFrEF: How To Improve Heart Failure Drug Development

XTalks

Since both studies involved participants from the UK Biobank, Dr. Tyl and colleagues used a version of the HERMES data which excluded those from the UK cohort to avoid overlapping data. Using Deep Clinical Data and WGS to Better Subtype Heart Failure Patients. Genuity Science Drug Target Discovery Study.

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Radiological Society of North America, Nov. 29-Dec. 5

The Pharma Data

Biobank and a clinical practice dataset of images collected at the University of Florida Center for Movement Disorders. Maximillian Diaz, a biomedical engineering Ph.D. The authors built two datasets of fundus eye images, a generalized dataset of images from the U.K. WEDNESDAY, Dec. 29 to Dec. Read Full Text. WEDNESDAY, Nov. 29 to Dec.