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NIH 2023 Data Management and Sharing Policy: What you Need to Know

Advarra

For example, the Genomic Data Sharing Policy applies to NIH-funded research generating large-scale human or non-human genomic data. If another applicable policy has more detailed expectations than what the DMS policy has, organizations should follow those expectations in addition to the DMS policy.

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10 Key Learnings from Successful Cellular and Gene Therapy Trials for Rare Diseases

XTalks

These are, in my view, the most valid comparisons, particularly in inherited diseases where the genotype is obviously the same in each individual patient, and as a consequence, the difference in phenotype after gene therapy is a true difference,” he adds. What are the best ways to engage patients for long-term follow-up visits?